Resource Centre

Your selection has returned 1 matching documents.

Find
Blog
18
Case Study
13
CPD
1
eBook
1
eCourses
64
Fact Sheet
8
Infographic
1
News Story
14

 

Dementia Support Contacts

Voluntary and Charitable Organisations Providing Dementia Support

1

Dementia Support Contacts

Voluntary and Charitable Organisations Providing Dementia Support

Red Rock Training have developed a series of courses specifically designed for those involved in the care of dementia sufferers, highlighting common misconceptions and giving practical advice and guidance on dementia care best practice. Our Dementia Care Courses cover all aspects of the illness and are a "must have" for anyone involved in this challenging and difficult area.

In addition to the services that can be provided by health and social services, there are also a number of charitable organisations that may be able to provide support in the way of information, and practical help. If part of your job is to provide care for someone who has a form of dementia then it may be useful to have some idea of charitable organisations within your area. You should also be able to obtain a list of voluntary organisations from your local social services department, citizen’s advice bureau, and council or library.

Age Concern.

On April 1st 2009 the four national Age Concerns in England, Scotland, Wales and Northern Ireland joined with Help the Aged to create four new national charities dedicated to improving the lives of older people. They all speak with one voice on behalf of all older people in order that they can achieve their vision of a world in which older people flourish.

Age concern is a charity providing services for older people in the UK through a network of local groups run by volunteers and paid staff. Local activities vary, ranging from providing advice and information to running day centres, over 60s clubs, transport schemes and home sitting services.

Age Concern England Free helpline 0800 00 99 66

Astral House 
1268 London Road 
London SW16 4ER

Back to Top ..

Age Exchange

Age Exchange was founded in 1983 in the context of an emerging awareness of the value of reminiscence work (see also unit 4, learning outcome 4.18), especially in care settings for older people. Age Exchange aims to improve quality of life by providing opportunities for wider appreciation of visual and performance arts projects, exhibitions, publications and film.

Website www.age-exchange.org.uk

Age Exchange

Telephone 020 8318 9105
The Reminiscence Centre
11 Blackheath Village
London SE3 9LA

Back to Top ..

Alzheimer’s Society

The Alzheimer’s Society is the leading care and research charity for people with Alzheimer’s disease and other forms of dementia, their families and carers. The Society has expertise in information and education, and produces fact sheets and other publications. They also have branches which run local services.

Website www.alzheimers.org.uk

Email info@alzheimers.org.uk

Alzheimer’s Society

Telephone 020 7306 0606 
Gordon House 
10 Greencoat Place

Back to Top ..

Anchor Trust

Anchor Trust is a not-for-profit organisation dedicated to helping older people live safely, securely and independently.

Website www.anchor.org.uk

Telephone 020 7759 9100
1st Floor
408 Strand
London
WC2R 0NE

Back to Top ..

Carers UK

Carers UK is the voice of carers and the leading campaigning, policy and information organisation for carers.

Website www.carersuk.org

Email info@carersuk.org

Carers UK (UK Office) Telephone 020 7490 8818

20/25 Glasshouse Yard
London 
EC1A 4JT

Back to Top ..

Continence Foundation

The Continence foundation provides information, advice and expertise to raise awareness about bladder and bowel problems. It co-operates with other charities and professional organisations to foster education, promote research and influence policy-makers and providers of services.

Website www.continence-foundation.org.uk

Email continence-help@dial.pipex.com

Continence Foundation National helpline 0845 345 0165 307

Hatton Square 
16 Baldwins Gardens 
London 
EC1N 7RJ

Back to Top ..

Counsel and Care

Counsel and Care provides free and confidential advice for people over 60 living in the UK and for relatives, friends and carers on subjects such as welfare benefits or help at home. The charity has a particular expertise in residential care.

Counsel and Care Email advice@counselandcare.org.uk
Twyman House 
Website www.counselandcare.org.uk 16 Bonny Street
London
NW1 9PG

This organisation runs a network of care attendant schemes in England and Wales. Its aim is to provide a flexible service to give respite care to carers so that they have time to themselves to do what they want to do. Trained and paid care support workers undertake activities that the carer normally carries out. The service is not restricted to office hours.

Different schemes vary in the amount of time they can offer.

Back to Top ..

Crossroads – Caring for Carers

Telephone 0845 4500350

10 Regent Place

Website www.crossroads.org.uk

Rugby

Back to Top ..

CJD Support Network

This national network provides information, advice and support for people with CJD (Creutzfeldt-Jakob disease) and their families and professionals. It produces publications on CJD and can put families in touch with each other for mutual support.

CJD Support Network CJD Helpline 01630 673973

Birchwood, Heath Top Email support@cjdsupport.net

Ashley Heath, Market Drayton Website www.cjdsupport.net

Shropshire TF9 4QR

Back to Top ..

Dementia Services Development Centre/Trust

The Dementia Services Development Centre works to spread research and good practice about home and hospital care for people with any type of dementia (this includes Alzheimer’s disease, multi-infarct dementia, Lewy body dementia, vascular dementia and alcohol-related dementia). They offer information about dementia to staff in health, social care, housing, voluntary, public and independent sectors about topics such as: design; activities; nutrition; day care; acute care; communication; behaviour that challenges; assistive technology; and spiritual care.

Dementia Services

Telephone 01786 467740

Development Centre

Website www.stir.ac.uk/dsdc

Iris Murdoch Building
University of Stirling
Stirling FK9 4LA

Back to Top ..

Disabled Living Foundation

The Disabled Living Foundation (DLF) is a national charity that provides free, impartial advice about all types of disability equipment and mobility products for older people and disabled people, their carers and families. Their services include: A helpline about disability equipment and suppliers every year; equipment demonstration centres; factsheets; help with self-assessments; databases and comparisons of disability equipment, bathing and showering products; training programmes for healthcare professionals and moving and handling courses.

Helpline 0845 130 9177
380-384 Harrow Road email advice@dlf.org.uk 
London W9 2HU

Website www.dlf.org.uk

Back to Top ..

Elderly Accommodation Counsel / Housing Care

The elderly accommodation counsel (EAC) aims to help people to make informed choices about meeting their housing and care needs. Advice is free and the EAC offer guidance and information on a wide range of subjects including:

  • Care and support to help individuals to live as independently as possible
  • Reassurance that help is at hand if needed
  • Housing adaptations
  • Moving to a care home
  • Hospice care for people who are terminally ill
  • How to pay for any of these services

Housing Care is part of the Elderly Accommodation Counsel (EAC) and provides an additional resource for older people, their families, carers and advisors, and all those who work with and for them.

They can provide detailed information on how to maintain, adapt or improve a person’s home or release equity from it, find care or home help services, find and move to retirement housing or choose a care home. It also specialises in extra care housing, assisted living and retirement villages.

Back to Top ..

Elderly Accommodation Counsel (EAC)

Email enquiries@eac.org.uk

www.eac.org.uk/www.housingcare.org

Telephone 020 7820 1343

3rd Floor,
89 Albert Embankment 
London SE1 7TP

Back to Top ..

Help the Aged

Help the Aged campaigns for change in government policy, undertakes research into the needs of older people and provides local services in communities across the UK and overseas.

Telephone 020 7278 1114

207-221 Pentonville Road
London
N1 9UZ

Website www.helptheaged.org.uk

Back to Top ..

Huntington’s Disease Association

Many people who develop Huntington’s disease also develop dementia. The association provides information, advice, support and useful publications for families affected by Huntington’s disease in England and Wales.

Website www.hda.org.uk

Email info@hda.org.uk

Huntington’s Disease Association

 Telephone 020 7022 1950

Downstream Building
1 London Bridge 
London 
SE1 9BG

Back to Top ..

MIND

Mind is a mental health charity that aims to improve the quality of life for people affected by mental health problems in England and Wales through means such as campaigning, developing services, providing advice and information and producing publications.

Website www.mind.org.uk

Email contact@mind.org.uk

Mind

Telephone 020 8519 2122 
15-19 Broadway
London 
E15 4BQ

Back to Top ..

The Motor Neurone Disease Association

The MND Association can provide information about how to access all the help and support you may need.

Website www.mndassociation.org

MND Association

Telephone 01604 250505 
PO Box 246 
Northampton 
NN1 2PR

Back to Top ..

Parkinson’s Disease Society

People with Parkinson’s disease are at a higher risk of developing dementia. The Parkinson’s disease Society gives information, advice and support and produces helpful publications.

Telephone 020 7931 8080 215

Website www.parkinsons.org.uk

Email enquiries@parkinsons.org.uk

Vauxhall Bridge Road
London
SW1V 1EJ

Back to Top ..

Pets as Therapy

Pets as Therapy (PAT) provides therapeutic visits to hospitals, hospices, nursing and care homes, special needs schools and a variety of other venues by volunteers with their own dogs and cats. Sick patients often feel isolated, and regular visits from PAT dogs bring happy associations for them.

Pets As Therapy

Website www.petsastherapy.org

3a Grange Farm Cottages
Wycombe Road 
Saunberton 
Princes Risborough 
Bucks 
HP27 9NS 

Back to Top ..

Pick’s Disease Support Group

This support group was established for carers and people with the following forms of dementia: dementia with Lewy bodies, fronto-temporal dementia (including frontal lobe degeneration and Pick’s disease), alcohol-related dementia and corticobasal degeneration.

Telephone 0845 458 3208

Email carol@pdsg.org.uk

Website www.pdsg.org.uk

Pick’s Disease Support Group 
8 Brooksby Close
Oadby
Leicester LE2 5AB

Back to Top ..

Relatives and Residents Association

The Relatives & Residents Association exists for older people needing, or living in, residential care and the families and friends left behind. They do this through: support and Information via the helpline; influencing policy and practice; and working with local relatives & residents groups in care homes.

Relatives and Residents Association

Telephone 0207 359 8148 24

Website www.relres.org

Email info@relres.org

The Ivories 
6-18 Northampton Street 
London N1 2HY

Sheltered accommodation and supported living consists of units where people (usually over the age of 60) can live independently, but where there is a warden on call via an alarm system who can offer a certain amount of supervision. The accommodation typically consists of groups of flats or bungalows, which can be bought or rented, where a small group of people live as independently as possible with the support of health and social care staff.

The flats are usually self-contained (with kitchens/bathrooms/living rooms etc.) so as to maintain privacy and encourage independence, however often there are: communal areas; organised activities; accommodation facilities for friends/relatives; security personnel/systems.

You can find out more information regarding sheltered accommodation at 
www.shelteredhousing.org

Back to Top ..

Stroke Association

The Stroke Association is a national charity providing information and practical support for people who have had strokes and their families or carers. It aims to help reduce the incidence of stroke through health education, and funds research and campaigns for better services.

Website www.stroke.org.uk

Email info@stroke.org.uk

Stroke Association
240 City Road 
London EC1V 2PR

Back to Top ..

The Princess Royal Trust for Carers

The Princess Royal Trust for Carers was set up in 1991 in order to provide support and advice to carers. It is the largest provider of comprehensive carers support services in the United Kingdom. In addition to providing support it also acts independently in the interest of carers through:

Research development and consultation Influence on national, regional and local policy Partnership with other national organisations Information through interactive websites, providing advice and access to support groups

The Princess Royal Trust for Carers
142 Minories
London EC3N 1LB

Telephone 020 7480 7788

Email info@carers.org

Website www.carers.org

Young carers website: www.youngcarers.net

Back to Top ..

Vitalise

Vitalise (formally known as the Winged Fellowship Trust) was established in 1963 in order to provide holidays for disabled carers and breaks for their carers. Vitalise firmly believe that disabled people should have the same rights, freedoms, responsibilities and quality of life as those without disabilities.

Vitalise has five purpose built holiday centres in England where care is provided by qualified staff and volunteers. Four of these centres run special Alzheimer’s weeks, which are sponsored by the Alzheimer’s society. These run at different times of the year and are for people who have dementia and their carers. Carers who attend on these weeks are encouraged to spend some time independently of the individual with dementia, so that they have a break too. The fifth centre caters for people with dementia all year round.

www.vitalise.org.uk

Email info@vitalise.org.uk

Vitalise (London Office)

Telephone 0845 345 1972
12 City Forum
250 City Road 
London 
EC1V 8AF

Fact Sheet

A list of potentially useful contacts for support and reference for Dementia Care

Downloads..